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Day in the Life of Dementia


 Day in the Life of Dementia, Actively Dying.
 

 

I work in an Assisted Living Facility. The qualifications to reside at an ALF is to be medically stable. Since I started working there 5 people have passed away.

The lastest death, last Friday, died at about 3:30 in the afternoon. The body was taken out at 5:30, while 64 residents ate dinner, a body bag was rolled out, literally in front of their eyes, and from the front windows they viewed the body bag being hoisted into the hearse.

 

Should the rest of the "medically stable" residents be exposed to such things??

 

This is the scam. In order to keep census up they admit people who are declining, stick them on hospice so they can be "covered" medically under the hospice umbrella. We are not responsible for their medical care at that point, hospice is.

 

This is not at all where I wanted to go with this post ....What happened??

O.K. this is what I really wanted to talk about.

 

Actively Dying

I hear this term over and over again at work. It's a term used when someone starts the process of dying. It's like fingernails on a chalkboard to me. "Mary is actively dying." said in the whispering tone...like "the cancer." I hear this in report from little snotty nosed girls and think.. what the hell...did you learn a new catch phrase?? And seriously...aren't we all actively dying to some degree. I don't know why I hate the term, I just do.

 

Active Dying is the final phase of life, which is usually measured in months, weeks, days or hours. Once a person has entered the actively dying phase, the focus of their care shifts from aggressively treating medical problems to providing comfort or palliative care.

 

Some of the more common symptoms that occur during the last days or hours of life are listed below.

 

Decrease in appetite and thirst. Along with inability to swallow, decreases in appetite and thirst affects the amount of food or fluids taken by mouth.

Nausea and vomiting. Will also contribute to the decrease in appetite. Nausea and vomiting can be side effect of some of the pain medication, which can be managed by adjusting the medication or the dosing.

Change in breathing patterns. Breathing patterns may become becomes irregular--shallow breaths followed by deep breath, periods of panting Cheyne-Stokes breathing pattern develops - several rapid breaths, followed by time of no respirations. Difficult or painful breathing, shortness of breath (dyspnea) Gurgling - noisy and moist breathing Congestion - Building up of fluids in the lungs.

Incontinence. Loss of bladder or bowel function in patient who was previously not incontinent.

Change in circulation, blood flow. Along with decrease in blood pressure, circulation or blood flowing out to extremities decreases, so hands and feet start to feel cooler to the touch. Person may complain of numbness in the legs and feet.

Restlessness, agitation and confusion. Restless, agitation such as jerking, twitching, pulling at bed linens or clothing. Disoriented and confused unsure about the time and place, identity of people even close family members.

Hallucinations. Person may report seeing people who have already died. Acting in a manner that is nor normal for the person. Withdraws and decrease interactions with friends and family. Withdraws from actively participating in social activities. Begins to progressively detach, slowly narrowing the circle of people and caregivers allowed to visit.

Less verbal. Less communication. Less interested in surroundings.

Change in skin color. Change in skin color as circulation decreases the arms and legs cool and turn blue, purple (cyanosis) or mottled.

Change sleeping and in level of consciousness. Increased periods of sleeping. Decrease in consciousness and responsiveness. Difficulty rousing patient or only able to arouse with great effort.

Eventually coma state occurs (unable to arouse at all) minutes to hours before death.

~~~~~~~~~~~~~~~~~~~~~~~~~~

I guess I have been a bit spoiled in the last few years of my career. I didn't have to witness or take part in this stage as much as I would in a Long Term Care Facility. My role in this, I provide the medications to keep them comfortable, usually scheduled morphine. I turn them and keep them clean. I keep the family updated as well as the hospice agency that is overseeing their medical care.

I know this is part of my job, dealing with the elderly I know what lies ahead for them. Should they have to see it ?? Should they see people they were eating dinner with the week before rolled out in a bag, NOT in an Assisted Living setting in my opinion....and don't say ACTIVELY DYING!! Think of a better, more dignified term.

 

Whew, I'm done I think.

 

Posted by AlzNurse929 at 12:48 AM - 14 Comments   Add a Comment  
 

 Day in the Life of Dementia, Thanksgiving Prayer
 

A Thanksgiving Prayer

Samuel F. Pugh

"O God, when I have food,

help me to remember the hungry;

When I have work,

help me to remember the jobless;

When I have a home,

help me to remember those who have no home at all;

When I am without pain,

help me to remember those who suffer,

And remembering,

help me to destroy my complacency;

bestir my compassion,

and be concerned enough to help;

By word and deed, those who cry out for what we take for granted.

Amen."

                                                           
Posted by AlzNurse929 at 7:00 PM - 22 Comments   Add a Comment  
 

 Day in the Life of Dementia, TGIF
 

My recent posts have been sad and searching.

Thank you for being so kind.

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Even little Chaps kitty had a hard time stomaching the whole thing.

Yeah, Chaps reads me.

She likes Sherry's Cherries too, a lot of her relatives have been featured.

Good things that have happened this week.

My checking account remained out of the "red zone."

Hook came home early, and stayed.

We didn't get any snow.

I didn't get one visit from the Jehovah's Witness.

I played several games of scrabble on-line and didn't lose one game.

My P.O.S Blazer started every time I needed it to.

I hope everyone has a great weekend.

 

GO BLUE!!

 

Nursey

Posted by AlzNurse929 at 5:12 PM - 13 Comments   Add a Comment  
 

 Day in the Life of Dementia, My Son.
 

November 14th, 1985

Twenty-one years ago today I became a mom.

We wait for the milestones. Their first word, their first step, going to school. You watch them grow independent. You protect, you nurture.

Today my son turns 21!! A milestone.

My son is angry with me. I won't be sharing in his celebration.

 

Dear Scotty

I miss you terribly. I think of you always as you are so deep in my heart. I want you to know I did the best I could as a mom. I look back and wish there were things I would have done differently but those things can't be changed or taken back now.

My Dearest Son

You make me laugh. You are charming and beautiful. The choices I've made that have hurt you were done with the best intentions. I will continue to try to protect you, I will continue to love you, I will accept your anger because I know you are safe.

My Only Child

I will be here for you always. I hope there will come a day when forgiving will be in your heart. When you understand a parents love and the sacrifices we make. I will take the anger above losing you forever.

Because I would not survive that.

I love you,

 

Mom

 

 

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Posted by AlzNurse929 at 4:32 PM - 22 Comments   Add a Comment  
 

 Day in the Life of Dementia, New Opportunity
 

Well, I arrived home after a very hectic night shift Tuesday morning and found an e-mail notifying me of a job I am being considered for. My resume has been posted on Hotjobs and Monster for years, I haven't even updated them in over 2 years.

The company that is bidding for the job is located in Texas. The position is located on the Air Force base here in Nebraska. My resume will be submitted with the proposal.

It is a dream job, working as a civilian on any military base has it's perks and great benefits, not to mention excellent pay.

I am nervous. I have no idea what the outcome of this will be. I will not even hear anything until after the 15th of November. It is a mixture of excitement and sadness because I will leave the old people I love. I am a bit scared as I have not worked in a skilled nursing setting for over 3 years my skills may be rusty and I will have a lot of studying to do.

I am  torn. I don't want to leave the comfort of what I've known for 17 years, but I do want to have a secure, professional setting as I am not getting any younger and need to consider what is best for the next 20 years as I work towards retirement.

 

So I'll wait, and let things happen as they do.

Thanks for listening.

Joy

Posted by AlzNurse929 at 5:27 PM - 10 Comments   Add a Comment  
 
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