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Day in the Life of Dementia


 The fly.
 

You know those fuzzy half dead flies that you see in the fall, I caught him and scanned him, well, cause I could.

 

 

 

 

 

Posted by AlzNurse929 at 11:02 PM - 9 Comments   Add a Comment  
 

 Day in the Life of Dementia, Deep Thoughts
 

 

 

Even though you may want to move forward in your life, you may have one foot on the brakes. In order to be free, we must learn how to let go. Release the hurt. Release the fear. Refuse to entertain your old pain. The energy it takes to hang onto the past is holding you back from a new life. What is it you would let go of today?

 -Mary Manin Morrissey-

 

Posted by AlzNurse929 at 3:31 PM - 6 Comments   Add a Comment  
 

 Day in the Life of Dementia, September 11, 2006
 



Five years ago today Hook and I were awoken by the phone, it was Harry, Brian's co-driver and friend, shaky voiced telling us something was happening we had to watch the news. We went downstairs and turned on the TV, and there it was, right before our eyes...

Brian was hauling U.S. mail at the time, to the Bronx and back 6 times a month. He had just been in New York and was scheduled to leave for the Bronx that night. The mail never stops.

He arrived in New York the next day. He had a police escort across the George Washington Bridge which was empty. New York was closed. The air was still smoky and thick. He described it as looking like the end of the world.

Five years ago, hard to believe. We all will remember where we were, what we were doing. It's forever carved in our memories.

Days like today I find it hard not to review my life.



What was your best day ever?

What was your worst, most devastating day ever?

When is the last time you helped someone?

When is the last time you called your distant family just to say you're thinking of them and love them?

When was the last time you forgave someone?

When was the last time you smiled at a stranger?

When was the last time you were grateful you had someone to lean on?

Do you go to bed at night with a sense of peace and pray for others?

How can I make the world a better place?

It's not just about being American, it's about believing we are all here for a purpose.

There is only one chance to do it right.



Posted by AlzNurse929 at 8:38 AM - 8 Comments   Add a Comment  
 

 Day in the Life of Dementia, This is freaky.
 





Oh my, try this and tell me what you see.

Posted by AlzNurse929 at 4:16 PM - 19 Comments   Add a Comment  
 

 Day in the Life of Dementia, Sundowners Syndrome.
 



The image above gives us a sense of beauty, an incredible sign that our day will soon end and we will rest. For some people with dementia the sun going down causes anxiety, behaviors, and agitation.

This is known as Sundowners Syndrome.

People with sundowners syndrome think they need to "go home" when the sun goes down. They aren't cognizant that they are "home" already, whether it be in a nursing facility or in their own home.

Sundowning refers to agitation and hyperactivity that begins in the early to mid afternoon and worsens over the course of the evening. Nocturnal agitation or sundowning is common in persons with dementia and as many as 25% of mid-stage demented patients will develop this symptom. The appropriate intervention for sundowning is: 1) assessment, 2) behavioral management, and then 3) pharmacological interventions. Sundowning can be a troublesome behavior in the nursing home and exhausting to family caregivers.

Common Sundowner's Syndrome Symptoms:

These symptoms, which are also symptoms of Alzheimer's Disease and other types of dementia, include:

Rapid mood changes
Anger
Crying
Agitation
Pacing
Fear

The most difficult symptoms to deal with are:

Hallucinations
Hiding Things
Paranoia
Violence
Wandering

These symptoms can be dangerous, both for the person with the Syndrome and for anyone around them.

No one is sure what causes sundowning, although it seems to result from brain disease. People with dementia tire more easily, even with very few demands on their thinking ability. They generally become more restless and hard to manage when tired.

Treatment for sundowners syndrome is generally limited to the underlying condition which triggers it. Alzheimer's disease or clinical depression. Antidepressants may lessen the severity of the confusion, while the Alzheimer's drugs, such as Aricept may improve cognitive function. Since sundowners syndrome is closely associated with sleep disorders and fatigue, sedatives and other sleeping aides may also help. Caregivers suggest encouraging several naps throughout the day and limit stimulating activities to the morning hours.

In my many years of caregiving I have nearly always worked evening or night shift. Sundowners syndrome is real. Usually right after dinner the behaviors begin. Some pack all their clothes up and wait for the taxi, some want to call their parents because they may be worried, some just pace, with no apparent destination. These behaviors account for increased falls during the evening hours, increased elopement risk, violence at times, directed at staff and other residents.

Each case is very individual and as caregivers you learn to deal with each resident. We call the resident's mom which may be as easy as calling the next nurses station and reassuring the resident that spending the night is okay. We give out phone books so the resident will try and locate the number of their family. Therapeutic fibs are used, not to deceive but to make things tolerable for the resident. The anxiety they are feeling is very real.



"What lies behind us and what lies before us are tiny matters compared to what lies within us."

-Ralph Waldo Emerson-
Posted by AlzNurse929 at 2:05 PM - 8 Comments   Add a Comment  
 
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