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Day in the Life of Dementia


 ....and Henry will die alone.
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I know I haven't post on here for a while. I had intented to start regulary posting after my year anniversary.

Nothing has struck me as "blog worthy" until now.

In June, I covered for the day nurse while she enjoyed a much needed vacation. During this time I was sent to a skilled facility to evaluate a potential resident.

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 "Henry"

I found "Henry" in his room, dozing quietly. I walked to the edge of the bed smiled, introduced myself. A tall, thin, frail man suffering from cancer smiled back.

We hit it off instantly.

With my check list in hand, his chart, I began asking questions. Henry answered with humor, some sarcasm, and didn't forget to leave out how he hated the food served at the facility.

I followed him to physical therapy. He walked slowly and was very weak. I watched as he did all of the things the physical therapist asked....as he rolled his eyes at me while her back was turned.

I spent about 2 hours with Henry that day.

 

My recommendation:

"Although Henry is alert and oriented x3 I feel he will not thrive in an assisted living setting. Henry is weak and declining. At this time I strongly believe Henry needs the structure and scheduled routine of a skilled nursing facility."

 

 Henry was admitted to the assisted living facility less than a month later despite my recommendation.

Henry was put on hospice 2 weeks ago.

He is dying.

The staff never had the opportunity to see the gentle, witty man I saw during his evaluation. The staff never understood that he needed special attention and coaxing to remain active and to keep his strength.

As caregivers we build relationships with our patients. We have our favorites. We learn their likes, dislikes, how they like their coffee, how the pillows should be when they sleep.

Henry has been deprived of that type of care. I am sad as I take care of Henry. I have no idea what would bring him comfort at this time. He remains in his room alone.

He hasn't been with us long enough to be someones favorite.....

......and Henry will die alone.

Posted by AlzNurse929 at 3:45 PM - 10 Comments   Add a Comment  
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Comments:

That's so sad. Why didn't they take your recommendation? I thought that's what your evaluation was for.

I feel sorry for Henry. No one should have to live in solitude & dye alone. At least Henry does have you.... You'll be his angel.
 
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by Secret - Victoria's First (PM , CC ) on Thursday August 2, 2007 @ 4:10 PM




Hey Secret,

Thanks for finding my neglected blog...

My recommendation was ignored, I believe, because of low census and the need for the administrative staff to fill rooms. The 3 grand a month, give or take, is more important in their eyes than quality patient care. (Ouch!! sad but true.)

I don't know if Henry would have been any better off in a skilled facility, but in assisted living the staff is not trained to deal with end of life issues.

I will do my best for Henry. I will be with him for 12 hours tonight. I hope he lasted through today.

Nursey
 
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by AlzNurse929 (PM , CC ) on Thursday August 2, 2007 @ 4:34 PM




Hey Ruby,

I do agree with that observation. At times, it is the families that are unable to come to terms with their loved ones decline and hold onto the hope that getting them as far away from a nursing home will help them to improve. "Nursing Home" is a negative term to many.

Skilled facilities have changed so much. Most here offer rehab services, activity directors, volunteers. The structure keeps the residents active. In skilled facitlities there are care plans for each resident. Nursing staff work towards meeting the goals of their residents and are reviewed routinely to see of those goals are being met of if they need to be revised.

Assisted living facilities are not required to do any of these things and for the most part the staff is not trained to provide this type of care.

Nursey
 
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by AlzNurse929 (PM , CC ) on Thursday August 2, 2007 @ 5:22 PM




thats heart breaking  
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by night light (PM , CC ) on Thursday August 2, 2007 @ 5:39 PM




that's sad, but so oftentimes true, Nursey. I'm sure you did what you could, but it doesn't make it hurt any less does it?  
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by Bella (PM , CC ) on Thursday August 2, 2007 @ 5:52 PM




Actually, respectfully disagree with you - Henry will not die alone - you already hold him in your heart and he holds you in his -

You will be with him when he draws his earthly breath.

I am sorry your recommendations were not followed - but you know you did your best.

And on behalf of Henry, I say, "Thank you"

ron
 
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by AZRON (PM , CC ) on Thursday August 2, 2007 @ 11:14 PM




Hello: My favorite nurse. Yep, it is me the Raven. I am touched by your comments about Henry. It is always a pity when people die without the touch of family to comfort them.

Just because of your post I will post another that may bring light to other family members who need to realize what they are doing by ignoring the old, the infirmed, and the dieing.

Still you do the work of angels.

Raven
 
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by Raven (PM , CC ) on Friday August 3, 2007 @ 1:56 AM




I wonder how the administrative staff will feel when it is their turn, or one of their loved ones who needs the care. It's been a while but I had some more sadness in my life in April, and this is the first time since then I have had a chance to visit your blog. I must say, Henry deserves better but then at least he does have you, and thank God for you and those like you in the medical profession. There aren't too many left, sad to say.
Veritee
 
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by Veritee (PM , CC ) on Sunday August 12, 2007 @ 3:43 AM




I came Here to Leave You a ...I leave Here Crying...This was Very Sad.  
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by LilLadyReg (PM , CC ) on Monday August 13, 2007 @ 12:01 AM




My name is not Henry but I empathize with him. Some time in the future we will all be "Henry", maybe by another name or in a new setting but we all will face the final curtain. How we die will probably depend on the kindness of another person who may, or may not allow us to die with dignity. If God is holding my hand when I die, at least I will die in peace. If I have abandoned Him then I deserve what Henry got.  
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by Raven (PM , CC ) on Tuesday August 28, 2007 @ 1:49 AM


 

 

 

 

 

 

 

 

 

 

 

   
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